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Drew
    10/19/09 at 11:00 PM
Reply with quote#1

On 8/25/09 I asked if anyone here had heard of the Compound   It is supposed to help us who have a problem with our gait.
 
It has some possabale strong side affects. All of which can be read by Goggling 4 Aminopyridine 5 mg. Aminopyridine at present can only to be purchased from a pharmacy that does compounds.
 
I have been told that perhaps by the end of October the drug Aminopyridine will be FDA approved.
I'm surprised that not one member has any coment about my searching for help in understaning this new drug.
 
Roy you seem to have the most input at erase ms and I thought you might have been able to provide me with some help with Aminopyridine.
If this 4 aminopyridine is in the stage of FDA approval them maybe it will help us all with our gaits.

I miss Ted.

Roy
    10/20/09 at 12:34 PM
Reply with quote#2

I miss Ted all so along with Sandy and a bunch of other that I can't think of right now.
 
No I haven't hear of Aminopyridine before. I check in to when I get the time.
 
Roy
 
PS
The worst thing about not having Ted around mean that I that I am the longest person to be on this board. I don't know if that is good or bad.
Drew
    10/20/09 at 05:49 PM
Reply with quote#3

That's all right Roy.
Sooner or later we all go missing.
Ted was a great sounding broad.  Your trying to help us is all we can ask of you.
I miss seeing Sandy's post's. I miss Ted's finding humor in dealing with this dreadful disease.
Do you hear anything from Ted?
Lin
    10/24/09 at 10:41 PM
Reply with quote#4

Drew:
I did not look at the dates....

I looked briefly and it looks like it's in clinical trials with Acorda
http://www.acorda.com
 
I do not know anyone who is taking it or thinking about it.
 
You could try looking on http://www.nmss.org
or
http://www.clinicaltrials.org
 
or
http://www.narcoms.org
or
http://www.msaa.org
for more info.
 
I wish I could do more.
 
Good luck and keep us updated.
 
Lin
Roy
    10/26/09 at 11:44 AM
Reply with quote#5

I all so look into it this weekend.
That about what I come up with this weekend Lin.
Below are a couple more sites that will help you understand how it work.If it do work out it be 4 or 5 years at least before any come of it.
 
Roy
 
 
 
 
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